Carol Vleeskens – Insights from a consumer involved in musculoskeletal research

In June, we had the opportunity to attend the Health Beyond Research and Innovation Showcase for South-West Sydney. In the afternoon, one of the sessions was focussed on consumer involvement in medical research. Carol Vleeskens, Convenor of the Consumer Community Council (CCC) for the Sydney Partnership for Health, Education,...

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Research Case Study: The ENDIA study – consumer engagement in practice – Part 2

Engagement in the ENDIA study Bill and Kelly

Recently, we spoke with Kelly (part of the research team) and Bill (a dad with type 1 diabetes) about consumer engagement in the ENDIA study, Australia’s largest study into the cause of type 1 diabetes, as a path to improve study recruitment, engagement and retention. In Part 1 of this...

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Research Case Study: The ENDIA study – consumer engagement in practice – Part 1

ENDIA study interview with Bill and Kelly

A couple of months ago, Kelly McGorm joined our Facebook group and we started up a conversation about her work recruiting for, and supporting the people participating in the ENDIA Study.  The ENDIA study is Australia’s largest study into the cause of type 1 diabetes and is currently recruiting...

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Research Case Study: Partnering with Health Consumers In Analysis of Research To Improve Hospital Test Result Management – Part 1: A Researcher’s Perspective

Sharing stories is so important for developing greater community and researcher awareness and capacity for working together. So when we heard about a workshop involving health consumers in the analysis of research results a couple of months ago, we asked if the researcher and health consumers involved would be...

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