PExS2018 Part 3(Final): Getting Patients & Researchers Working Together

Working Together

In the 3rd and final wrap of the workshop we held at the NSW Patient Experience Symposium (#PExS2018), we cover what Anthony Brown, Executive Director of Health Consumers NSW (HCNSW) shared in his overview of HCNSW, their interest in research, and getting researchers and patients working together, based on the...

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Our learnings from the SLHD Patient & Family Symposium

SLHD Patient and Family Symposium

Sydney Local Health District (SLHD) are in the midst of their Innovation Week 2018. They chose to kick off the week with a Patient and Family Symposium, highlighting the importance of keeping patients and their families as the focus for their activities. Given our interest in patient engagement, we...

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Perspectives on consumers in research – #TrialsTues

Health Voices - Consumers in research

We are very passionate about the possibilities for health consumers in research, as well as their carers. It was for this very reason that Research4Me was launched – to make it easier for health consumers and their families/carers to connect with research. , . For example, 80% of clinical trials...

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Launching #TrialsTues – Regularly Demystifying Clinical Trials

#TrialsTuesday

Today we are launching #TrialsTues to shine a spotlight on and encourage involvement in clinical trials on an ongoing basis. In 2005, ECRIN launched International Clinical Trials Day (ICTD), 20th May, to commemorate the day when James Lind started his famous clinical trial on scurvy in 1747, May 20th, and...

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#MedTech2017 Panel Recap: Patient Engagement in Clinical Trials

#MedTech2017 Panel Recap: Patient Engagement in Clinical Trials

Wednesday, 1 November, we had the privilege to be invited to be a panellist on a discussion about patient engagement in clinical trials at the Medical Technology Association of Australia’s (MTAA) annual medtech industry conference – MedTech 2017. The discussion was chaired by Melanie Gentgall, CEO of Praxis Australia, a non-profit...

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Report: Involving Health Consumers in Health and Medical Research

Report: Involving Health Consumers in Health and Medical Research

Last year, we held a workshop in partnership with Health Consumers NSW (HCNSW) with health consumers to understand what they perceived as the barriers and enablers to becoming more involved as medical research and clinical trials as partners in that research. Today we are pleased to release in partnership...

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