On 21 Feb 2019, The University of Sydney, co funded by the University of Edinburgh, is holding an event. Knowledge from lived experience, ‘consumers’, ‘patients’ and ‘publics’ is becoming increasingly part of not just the results of research in health but of the creation and interpretation of health research....
It’s that time of year when we all start to reflect on our 2018 activities, and plan for the year ahead. Research4Me is no different. If I had to sum up 2018, its been another year of listening and learning from all corners of our community, from the patients,...
Research4Me is delighted to be participating in a panel discussion around consumer engagement in clinical trials, and exhibiting at the 2018 ACTA Summit. ACTA, the Australian Clinical Trials Alliance, is a national peak body supporting and representing the networks of clinician researchers that conduct investigator-initiated or “public-good” clinical trials within the Australian health system. The...
Recently, we spoke with Kelly (part of the research team) and Bill (a dad with type 1 diabetes) about consumer engagement in the ENDIA study, Australia’s largest study into the cause of type 1 diabetes, as a path to improve study recruitment, engagement and retention. In Part 1 of this...
A couple of months ago, Kelly McGorm joined our Facebook group and we started up a conversation about her work recruiting for, and supporting the people participating in the ENDIA Study. The ENDIA study is Australia’s largest study into the cause of type 1 diabetes and is currently recruiting...
In case you missed our social media anouncements, we’ve been promoting the opportunity for a health consumer to get a free registration to come along to the ACTA clinical trials summit 29-30Nov18 in Sydney next week. Our Events and Current Opportunities pages can tell you more about the conference,...
Sharing stories is so important for developing greater community and researcher awareness and capacity for working together. So when we heard about a workshop involving health consumers in the analysis of research results a couple of months ago, we asked if the researcher and health consumers involved would be...
Each August, Science Week runs across Australia. It is an opportunity to raise the profile of and engage people in science and research, from small grass roots events to large scale citizen science projects. This includes teaching children, who will be our next generation of STEM leaders. As a...
For those that haven’t heard, the Australian government is building a $20billion Medical Research Future Fund (MRFF). Per the website, this additional investment in health and medical research outside of the funding given to the National Health and Medical Research Council is “about giving Australians in need hope —...
Sydney Local Health District (SLHD) are in the midst of their Innovation Week 2018. They chose to kick off the week with a Patient and Family Symposium, highlighting the importance of keeping patients and their families as the focus for their activities. Given our interest in patient engagement, we...
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