Launching today, we are inviting people to reflect on and share via #ResearchThisWeekI each Friday at least one thing they might have done, learnt, participated in, contributed to, etc over the past week to help themselves, or the greater good in health and medical research and clinical trials. It...
Recently, we spoke with Kelly (part of the research team) and Bill (a dad with type 1 diabetes) about consumer engagement in the ENDIA study, Australia’s largest study into the cause of type 1 diabetes, as a path to improve study recruitment, engagement and retention. In Part 1 of this...
A couple of months ago, Kelly McGorm joined our Facebook group and we started up a conversation about her work recruiting for, and supporting the people participating in the ENDIA Study. The ENDIA study is Australia’s largest study into the cause of type 1 diabetes and is currently recruiting...
Our founder first crossed paths with Reina S. Weiner a couple of years ago, and interviewed her for the #WhyClinicalTrialsMatters campaign she started before founding Research4Me. You can catch up on that interview here where Reina shares why you need to either ask about clinical trials, or potentially miss...
In the 3rd and final wrap of the workshop we held at the NSW Patient Experience Symposium (#PExS2018), we cover what Anthony Brown, Executive Director of Health Consumers NSW (HCNSW) shared in his overview of HCNSW, their interest in research, and getting researchers and patients working together, based on the...
A week from now, the inaugural international PopupStar teams who competed to run a community-based event to raise awareness of clinical trials will gather in New York to hear the winner of the competition announced. The PopupStar competition aimed to bring together teams inclusive of all the stakeholders of...
We are very passionate about the possibilities for health consumers in research, as well as their carers. It was for this very reason that Research4Me was launched – to make it easier for health consumers and their families/carers to connect with research. , . For example, 80% of clinical trials...
We all tend to think that the medicines we get prescribed to us have been tested in a way that means they are likely to work for us. As adults, if a medicine is being used for the purpose it was approved, then that is probably a pretty safe...
May 20 is International Clinical Trials Day. It celebrates the first recognised controlled clinical trial of modern times, where James Lind investigated potential cures of scurvy, and discovered the role of citrus fruits in curing it. It’s a useful trial to celebrate, not just because it was the first...
Patient-centricity is one of the latest themes building momentum in clinical trial circles, but it is a concept many are still struggling to put into practice. Despite the fact that most people I have worked with are involved in clinical trials because they want to do good for patients, it...
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