#PtExp Archives - Research 4 Me

Carol Vleeskens – Insights from a consumer involved in musculoskeletal research

CommunityAdmin, 20 September 2019, #PtExp, Case Study, Consumer Involvement in Research, clinical research, Clinical Trial, consumer representative, consumers in research, health consumers, Medical Research, participant experiences, patient engagement, Patient Experience, patient involvement, Patient Voice, patients included, PPI, public involvement, 0

In June, we had the opportunity to attend the Health Beyond Research and Innovation Showcase for South-West Sydney. In the afternoon, one of the sessions was focussed on consumer involvement in medical research. Carol Vleeskens, Convenor of the Consumer Community Council (CCC) for the Sydney Partnership for Health, Education,...

Jackie Barreau: On The Value of Patient Involvement in Research

CommunityAdmin, 14 April 2019, #PtExp, Guest Post, Patient Engagement, Showcase, consumer, consumer representative, consumers in research, health consumers, Jackie Barreau, Medical Research, patient, patient engagement, Patient Experience, Patient Voice, Patient-Centric, patients included, PPI, public involvement, 0

Recently, we participated in a 4 week online course through Stanford Medicine X run by Dr Larry Chu and Dr Amy Price called “Partnering with the patients and the public in medical research” . It provided a nice introduction to topics like consumerism in healthcare, what can be gained...

Research Case Study: The ENDIA study – consumer engagement in practice – Part 2

CommunityAdmin, 26 November 2018, #PtExp, Case Study, Patient Engagement, Public Perceptions, Australia, clinical research, consumers in research, Medical Research, participant experiences, patient engagement, patient involvement, patients included, 0

Engagement in the ENDIA study Bill and Kelly

Recently, we spoke with Kelly (part of the research team) and Bill (a dad with type 1 diabetes) about consumer engagement in the ENDIA study, Australia’s largest study into the cause of type 1 diabetes, as a path to improve study recruitment, engagement and retention. In Part 1 of this...

Research Case Study: The ENDIA study – consumer engagement in practice – Part 1

CommunityAdmin, 25 November 2018, #PtExp, Case Study, Patient Engagement, Public Perceptions, Australia, clinical research, consumer representative, consumers in research, health consumers, Medical Research, patient engagement, patient involvement, Patient Voice, patients included, PPI, public perception, 0

ENDIA study interview with Bill and Kelly

A couple of months ago, Kelly McGorm joined our Facebook group and we started up a conversation about her work recruiting for, and supporting the people participating in the ENDIA Study. The ENDIA study is Australia’s largest study into the cause of type 1 diabetes and is currently recruiting...

Reina’s Top 7 Reasons Why Clinical Trials Matter

CommunityAdmin, 20 November 2018, #PtExp, #TrialsTues, #WhyClinicalTrialsMatter, Clinical Trial Awareness, Clinical Trials, Guest Post, Public Perceptions, Trial Participant Experiences, #askaboutcts, #WhyClinicalTrialsMatter, clinical research, Clinical Trial, Clinical Trial Awareness, clinical trial participant, Clinical Trials, Medical Research, participant experiences, Patient Experience, public perception, 0

Our founder first crossed paths with Reina S. Weiner a couple of years ago, and interviewed her for the #WhyClinicalTrialsMatters campaign she started before founding Research4Me. You can catch up on that interview here where Reina shares why you need to either ask about clinical trials, or potentially miss...

PExS2018 Part 3(Final): Getting Patients & Researchers Working Together

CommunityAdmin, 24 June 2018, #PtExp, Clinical Trial Awareness, Clinical Trials, Events, Patient Engagement, Public Perceptions, Trial Participant Experiences, Clinical Trial Awareness, Clinical Trials, consumer representative, Health Consumers NSW, Medical Research, participant experiences, Patient-Centric, PExS2018, Report, trial recruitment, 0

In the 3rd and final wrap of the workshop we held at the NSW Patient Experience Symposium (#PExS2018), we cover what Anthony Brown, Executive Director of Health Consumers NSW (HCNSW) shared in his overview of HCNSW, their interest in research, and getting researchers and patients working together, based on the...

Our learnings from the SLHD Patient & Family Symposium

CommunityAdmin, 20 June 2018, #PtExp, Patient Engagement, Thoughts, #SLHDInnovation, carer, consumer, Family, health, patient, patient engagement, Patient Experience, Patient Voice, Patient-Centric, SLHD, Symposium, 1

Sydney Local Health District (SLHD) are in the midst of their Innovation Week 2018. They chose to kick off the week with a Patient and Family Symposium, highlighting the importance of keeping patients and their families as the focus for their activities. Given our interest in patient engagement, we...

Perspectives on consumers in research – #TrialsTues

CommunityAdmin, 15 May 2018, #PtExp, #TrialsTues, International Clinical Trials Day, Patient Engagement, Public Perceptions, #clinicaltrialsday, Australia, CHF, clinical research, Clinical Trials, consumers in research, health consumer, health research, Medical Research, patient engagement, Patient Experience, Research4Me, 0

We are very passionate about the possibilities for health consumers in research, as well as their carers. It was for this very reason that Research4Me was launched – to make it easier for health consumers and their families/carers to connect with research. , . For example, 80% of clinical trials...

Can better clinic environments create a better clinical trial experience?

CommunityAdmin, 13 December 2017, #PtExp, Thoughts, Trial Participant Experiences, 0

Warm, friendly, relaxing…. these are not the words we usually associate with medical clinics. Instead, we are more likely to associate the words cold, impersonal, uncomfortable due to the white or beige walls, plastic or metal chairs, lino or stone floors. So why would anyone want to volunteer their...

#MedTech2017 Panel Recap: Patient Engagement in Clinical Trials

Website Administrator, 3 November 2017, #PtExp, Clinical Trials, Events, Patient Engagement, Trial Participant Experiences, clinical trial participant, Clinical Trials, CTTI, medical technology, MedTech, MedTech2017, patient engagement, research partner, 0

Wednesday, 1 November, we had the privilege to be invited to be a panellist on a discussion about patient engagement in clinical trials at the Medical Technology Association of Australia’s (MTAA) annual medtech industry conference – MedTech 2017. The discussion was chaired by Melanie Gentgall, CEO of Praxis Australia, a non-profit...

Carol Vleeskens – Insights from a consumer involved in musculoskeletal research

Jackie Barreau: On The Value of Patient Involvement in Research

Research Case Study: The ENDIA study – consumer engagement in practice – Part 2

Research Case Study: The ENDIA study – consumer engagement in practice – Part 1

Reina’s Top 7 Reasons Why Clinical Trials Matter

PExS2018 Part 3(Final): Getting Patients & Researchers Working Together

Our learnings from the SLHD Patient & Family Symposium

Perspectives on consumers in research – #TrialsTues

Can better clinic environments create a better clinical trial experience?

#MedTech2017 Panel Recap: Patient Engagement in Clinical Trials

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