participant experiences Archives

What Involving People in Research Can Look Like – Sydney 11Dec19

CommunityAdmin, 11 December 2019, 11Dec19, Clinical Trial, consumer representative, consumers in research, Discussion, Event, Gathering, health consumers, Medical Research, Melbourne, Networking, participant experiences, patient engagement, Patient Experience, patient involvement, patients included, PPI, public involvement, Sydney, 0

Interested or involved in medical research and clinical trials as a patient/carer/consumer rep? Are you a researcher or organisation involving people (or wanting to) in your research? Research4Me is committed building a community interested, engaged and supported to get involved (or involve people) in research. We bring people together...

What Involving People in Research Can Look Like

CommunityAdmin, 21 November 2019, 21Nov19, Clinical Trial, consumer representative, consumers in research, Discussion, Event, Gathering, health consumers, Medical Research, Melbourne, Networking, participant experiences, patient engagement, Patient Experience, patient involvement, patients included, PPI, public involvement, 0

Interested or involved in medical research and clinical trials as a patient/carer/consumer rep? Are you a researcher or organisation involving people (or wanting to) in your research? Research4Me is committed building a community interested, engaged and supported to get involved (or involve people) in research. We bring people together...

Carol Vleeskens – Insights from a consumer involved in musculoskeletal research

CommunityAdmin, 20 September 2019, #PtExp, Case Study, Consumer Involvement in Research, clinical research, Clinical Trial, consumer representative, consumers in research, health consumers, Medical Research, participant experiences, patient engagement, Patient Experience, patient involvement, Patient Voice, patients included, PPI, public involvement, 0

In June, we had the opportunity to attend the Health Beyond Research and Innovation Showcase for South-West Sydney. In the afternoon, one of the sessions was focussed on consumer involvement in medical research. Carol Vleeskens, Convenor of the Consumer Community Council (CCC) for the Sydney Partnership for Health, Education,...

Research Case Study: The ENDIA study – consumer engagement in practice – Part 2

CommunityAdmin, 26 November 2018, #PtExp, Case Study, Patient Engagement, Public Perceptions, Australia, clinical research, consumers in research, Medical Research, participant experiences, patient engagement, patient involvement, patients included, 0

Engagement in the ENDIA study Bill and Kelly

Recently, we spoke with Kelly (part of the research team) and Bill (a dad with type 1 diabetes) about consumer engagement in the ENDIA study, Australia’s largest study into the cause of type 1 diabetes, as a path to improve study recruitment, engagement and retention. In Part 1 of this...

Reina’s Top 7 Reasons Why Clinical Trials Matter

CommunityAdmin, 20 November 2018, #PtExp, #TrialsTues, #WhyClinicalTrialsMatter, Clinical Trial Awareness, Clinical Trials, Guest Post, Public Perceptions, Trial Participant Experiences, #askaboutcts, #WhyClinicalTrialsMatter, clinical research, Clinical Trial, Clinical Trial Awareness, clinical trial participant, Clinical Trials, Medical Research, participant experiences, Patient Experience, public perception, 0

Our founder first crossed paths with Reina S. Weiner a couple of years ago, and interviewed her for the #WhyClinicalTrialsMatters campaign she started before founding Research4Me. You can catch up on that interview here where Reina shares why you need to either ask about clinical trials, or potentially miss...

PExS2018 Part 3(Final): Getting Patients & Researchers Working Together

CommunityAdmin, 24 June 2018, #PtExp, Clinical Trial Awareness, Clinical Trials, Events, Patient Engagement, Public Perceptions, Trial Participant Experiences, Clinical Trial Awareness, Clinical Trials, consumer representative, Health Consumers NSW, Medical Research, participant experiences, Patient-Centric, PExS2018, Report, trial recruitment, 0

In the 3rd and final wrap of the workshop we held at the NSW Patient Experience Symposium (#PExS2018), we cover what Anthony Brown, Executive Director of Health Consumers NSW (HCNSW) shared in his overview of HCNSW, their interest in research, and getting researchers and patients working together, based on the...

Launching #TrialsTues – Regularly Demystifying Clinical Trials

CommunityAdmin, 8 May 2018, #TrialsTues, Clinical Trial Awareness, Patient Engagement, #askaboutcts, #TrialsTuesday, ask about clinical trials, clinical research, Clinical Trials, CRAACO, participant experiences, 0

Today we are launching #TrialsTues to shine a spotlight on and encourage involvement in clinical trials on an ongoing basis. In 2005, ECRIN launched International Clinical Trials Day (ICTD), 20th May, to commemorate the day when James Lind started his famous clinical trial on scurvy in 1747, May 20th, and...

What Involving People in Research Can Look Like – Sydney 11Dec19

What Involving People in Research Can Look Like

Carol Vleeskens – Insights from a consumer involved in musculoskeletal research

Research Case Study: The ENDIA study – consumer engagement in practice – Part 2

Reina’s Top 7 Reasons Why Clinical Trials Matter

PExS2018 Part 3(Final): Getting Patients & Researchers Working Together

Launching #TrialsTues – Regularly Demystifying Clinical Trials

Membership

CONTACT US

Tag Archive for: participant experiences

What Involving People in Research Can Look Like – Sydney 11Dec19

What Involving People in Research Can Look Like

Carol Vleeskens – Insights from a consumer involved in musculoskeletal research

Research Case Study: The ENDIA study – consumer engagement in practice – Part 2

Reina’s Top 7 Reasons Why Clinical Trials Matter

PExS2018 Part 3(Final): Getting Patients & Researchers Working Together

Launching #TrialsTues – Regularly Demystifying Clinical Trials

Membership

CONTACT US

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