Interested or involved in medical research and clinical trials as a patient/carer/consumer rep? Are you a researcher or organisation involving people (or wanting to) in your research? Research4Me is committed building a community interested, engaged and supported to get involved (or involve people) in research. We bring people together...
Interested or involved in medical research and clinical trials as a patient/carer/consumer rep? Are you a researcher or organisation involving people (or wanting to) in your research? Research4Me is committed building a community interested, engaged and supported to get involved (or involve people) in research. We bring people together...
In June, we had the opportunity to attend the Health Beyond Research and Innovation Showcase for South-West Sydney. In the afternoon, one of the sessions was focussed on consumer involvement in medical research. Carol Vleeskens, Convenor of the Consumer Community Council (CCC) for the Sydney Partnership for Health, Education,...
Recently, we participated in a 4 week online course through Stanford Medicine X run by Dr Larry Chu and Dr Amy Price called “Partnering with the patients and the public in medical research” . It provided a nice introduction to topics like consumerism in healthcare, what can be gained...
Research4Me and ARCS Australia have signed a Memorandum of Understanding, committing to taking action to increase the engagement and involvement of patients, caregivers and the public in health and medical research. The lived experience of patients and caregivers dealing with the health issues researchers are studying, as well as...
On 21 Feb 2019, The University of Sydney, co funded by the University of Edinburgh, is holding an event. Knowledge from lived experience, ‘consumers’, ‘patients’ and ‘publics’ is becoming increasingly part of not just the results of research in health but of the creation and interpretation of health research....
It’s that time of year when we all start to reflect on our 2018 activities, and plan for the year ahead. Research4Me is no different. If I had to sum up 2018, its been another year of listening and learning from all corners of our community, from the patients,...
Research4Me is delighted to be participating in a panel discussion around consumer engagement in clinical trials, and exhibiting at the 2018 ACTA Summit. ACTA, the Australian Clinical Trials Alliance, is a national peak body supporting and representing the networks of clinician researchers that conduct investigator-initiated or “public-good” clinical trials within the Australian health system. The...
Recently, we spoke with Kelly (part of the research team) and Bill (a dad with type 1 diabetes) about consumer engagement in the ENDIA study, Australia’s largest study into the cause of type 1 diabetes, as a path to improve study recruitment, engagement and retention. In Part 1 of this...
A couple of months ago, Kelly McGorm joined our Facebook group and we started up a conversation about her work recruiting for, and supporting the people participating in the ENDIA Study. The ENDIA study is Australia’s largest study into the cause of type 1 diabetes and is currently recruiting...
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